Clinical Sequencing Evidence-Generating ResearchActive August, 2020 to July, 2023CSER Research Materials
The Clinical Sequencing Exploratory Research (CSER Phase 1) consortium and Clinical Sequencing Evidence-Generating Research (CSER Phase 2) consortium has produced a vast amount of publications and materials from their studies. Below are the research materials that CSER have shared with the research community.
Baylor College of Medicine
Kaiser Permanente
Baylor College of Medicine
Brigham & Women's Hospital
Children's Hospital of Philadelphia
ClinSeq
Dana-Farber Cancer Institute
HudsonAlpha
Kaiser Permanente
University of Michigan
University of North Carolina
- Assent Form: (Ages 15-17) Relatives of an study participant to test for a specific variant
- Assent Form: (Ages 7-14) Relatives of an study participant to test for a specific variant
- Consent for Adult Relatives of an study participant to test for a specific variant
- Parental Consent for Child Relatives of an study participant to test for a specific variant
University of Washington
Baylor College of Medicine
- Genetic Information Nondiscrimination Act (GINA) Document
- GINA Document (Spanish Version)
- Inherited Mutation Explanation Card
- Inherited Mutation Explanation Card (Spanish Version)
- Revised Carrier Status Explanation (Spanish Version)
- Revised Carrier Status Explanation Card
- Study Borchure (Spanish Version)
- Study Brochure
- Tumor Mutation Explanation Card
- Tumor Mutation Explanation Card (Spanish Version)
- X-Linked Explanation Card
- X-Linked Explanation Card (Spanish Version)
ClinSeq
Dana-Farber Cancer Institute
University of Michigan
University of North Carolina
University of Washington
Baylor College of Medicine
- Family history questionnaire for primary parent
- Family history questionnaire for primary parent (Spanish Version)
- Germline Requisition Document
- Study questionnaire for primary completing comleting for child (Spanish Version)
- Study questionnaire for primary parent completing for child
- Study Questionnaires for Primary or Secondary parent completing for themselves
- Study Questionnaires for Primary or Secondary parent completing for themselves (Spanish Version)
Brigham & Women's Hospital
Dana-Farber Cancer Institute
University of Michigan
Baylor College of Medicine
Brigham & Women's Hospital
Children's Hospital of Philadelphia
ClinSeq
Dana-Farber Cancer Institute
Kaiser Permanente
University of Michigan
University of North Carolina
KidsCanSeq
- KidsCanSeq Age of Majority Consent Form - Germline and Tumor
- KidsCanSeq Age of Majority Consent Form - Germline ONLY
- KidsCanSeq Parent Consent Form
- KidsCanSeq Patient Consent Form - Germline and Tumor
- KidsCanSeq Patient Consent Form - Germline ONLY
- KidsCanSeq Physician Consent
- KidsCanSeq Spanish Age of Majority Germline and Tumor Consent Form
- KidsCanSeq Spanish Age of Majority Germline ONLY Consent Form
- KidsCanSeq Spanish Parent Consent Form
- KidsCanSeq Spanish Patient Consent Form - Germline and Tumor
- KidsCanSeq Spanish Patient Consent Form - Germline ONLY
NCGENES 2
- Assent to Participate in a Research Study (Child Subjects ages 15-17)
- Assent to Participate in a Research Study (Child Subjects ages 7-14)
- Assent to Research Genomic Sequencing (Child Subjects ages 15-17)
- Assent to Research Genomic Sequencing (Child Subjects ages 7-14)
- Consent to Participate in a Research Study
- Consent to Research Genomic Sequencing
NYCKidSeq
- NYCKidSeq Assent
- NYCKidSeq Cognitively Intact 18-21 Year Old ICF
- NYCKidSeq Parent of 0-17 Year Old Child ICF
- NYCKidSeq Parent of Cognitively Incapacitated 18-21 Child ICF
- NYCKidSeq Parent of Cognitively Intact 18-21 Year Old ICF
- NYCKidSeq Parental Baseline Survey ICF
- NYCKidSeq Reconsent of Cognitively Intact Minor Turned 18 Years ICF
- SPANISH NYCKidSeq Assent
- SPANISH NYCKidSeq Cognitively Intact 18-21 Year Old ICF
- SPANISH NYCKidSeq Parent of 0-17 Year Old Child ICF
- SPANISH NYCKidSeq Parent of Cognitively Incapacitated 18-21 Child ICF
- SPANISH NYCKidSeq Parent of Cognitively Intact 18-21 Child ICF
- SPANISH NYCKidSeq Reconsent of Cognitively Intact Minor Turned 18 Years ICF
- SPANISH Parental Baseline Survey ICF
- SPANISH TeleKidSeq Assent
- SPANISH TeleKidSeq Cognitively Intact 18-21 Year Old ICF
- SPANISH TeleKidSeq Parent of 0-17 Year Old Child ICF
- SPANISH TeleKidSeq Parent of Cognitively Incapacitated 18-21 Child ICF
- SPANISH TeleKidSeq Parent of Cognitively Intact 18-21 Child ICF
- SPANISH TeleKidSeq Parental Baseline Survey ICF
- SPANISH TeleKidSeq Reconsent of Cognitively Intact Minor Turned 18 Years ICF
- TeleKidSeq Assent
- TeleKidSeq Cognitively Intact 18-21 Year Old ICF
- TeleKidSeq Parent of 0-17 Year Old Child ICF
- TeleKidSeq Parent of Cognitively Incapacitated 18-21 Year Old ICF
- TeleKidSeq Parent of Cognitively Intact 18-21 Year Old ICF
- TeleKidSeq Parental Baseline Survey ICF
- TeleKidSeq Reconsent of Cognitively Intact Minor Turned 18 Years ICF
SouthSeq
- Consent Form - CHNOLA
- Consent Form - CHNOLA (Spanish)
- Consent Form - UAB
- Consent Form - UAB (Spanish)
- Consent Form - UMMC
- Consent Form - UMMC (Spanish)
- Consent Form - University of Lousiville
- Consent Form - University of Lousiville (Spanish)
- Consent Form - Woman's Hospital, Baton Rouge, Louisiana
- Consent Form - Woman's Hospital, Baton Rouge, Louisiana (Spanish)
KidsCanSeq
- Genetics Glossary
- Genetics Glossary (Spanish)
- Germline and Tumor Results Explanation Card
- Germline and Tumor Results Explanation Card (Spanish)
- Germline Results Explanation Card
- Germline Results Explanation Card (Spanish)
- QR Codes to Videos (English)
- QR Codes to Videos (Spanish)
- VUS Education Document
- VUS Education Document (Spanish)
NCGENES 2
CHARM
KidsCanSeq
SouthSeq
NYCKidSeq
- NYCKidSeq Baseline Survey
- NYCKidSeq Baseline Survey - Spanish
- NYCKidSeq Provider Return of Results Follow-up Survey #1
- NYCKidSeq Return of Results Follow-up Survey #1
- NYCKidSeq Return of Results Follow-up Survey #1 - Spanish
- NYCKidSeq Return of Results Follow-up Survey #2
- NYCKidSeq Return of Results Follow-up Survey #2 - Spanish
- TeleKidSeq Baseline Survey
- TeleKidSeq Baseline Survey - Spanish
- TeleKidSeq Return of Results Follow-up Survey #1
- TeleKidSeq Return of Results Follow-up Survey #1 - Spanish
- TeleKidSeq Return of Results Follow-up Survey #2
- TeleKidSeq Return of Results Follow-up Survey #2 - Spanish
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